RESOURCES
Our resources to help our patients or anyone in need of help with lymphedema.
Breast Cancer
Living Beyond Breast Cancer provides trusted information and support to those impacted by breast cancer, fostering a community of care and understanding.
Our mission is to end breast cancer through groundbreaking research, working tirelessly towards a future without this disease. Join us in our fight – together, we can make a difference.
The Breast Cancer Alliance funds innovative research, fellowships, and educational outreach to improve breast cancer survival and care, focusing on underserved communities. They support cutting-edge projects and professional development in the field of breast cancer.
NBCF supports those affected by breast cancer with a focus on early detection, education, and providing essential support services. They encourage community involvement and contributions to further their impactful work.
The National Breast Cancer Coalition, founded in 1991 by survivors including President Fran Visco, is a grassroots advocacy group dedicated to ending breast cancer through advocacy, education, policy, and research.
The National Consortium of Breast Centers, Inc. (NCBC) is a nonprofit focused on enhancing breast health care. It connects professionals and corporations to advance patient-focused care through education, certification, and interdisciplinary communication since 1985.
Breastcancertrials.org advocates the importance of clinical trials in enhancing breast cancer care, offering participants access to innovative treatments and the opportunity to contribute to significant medical advancements in prevention, diagnosis, and treatment.
Nancy's List is a community-driven project inspired by Nancy's own cancer journey, focusing on supporting and connecting those affected by cancer, ensuring no one faces the illness alone.
The Triple Negative Breast Cancer Foundation, initiated to support a young mother with the disease, brings together experts and hosts various events to advance its mission. The foundation's work and financial transparency are accessible through their events and public documents.
FORCE is focused on supporting individuals and families affected by hereditary cancers, providing education, support, and advocacy. They cater to those with genetic mutations linked to various cancers, ensuring a community-driven approach to informed healthcare decisions and advocating for better treatments and prevention.
The AiRS Foundation, founded by Janet Denlinger and Morgan Hare, partners with healthcare professionals to provide breast reconstruction surgery to women in need, focusing on education, resources, and advocacy for breast cancer survivors.
METAvivor is a unique non-profit dedicated to stage 4 metastatic breast cancer, focusing on funding research, raising awareness, and providing support. They aim to make this cancer a manageable disease and advocate for significant funding towards it, ensuring that donations are used exclusively for research.
YSC supports young adults with breast cancer through advocacy, education, and community-building, addressing their unique challenges and needs. Founded in 1998, it offers resources and programs specifically for those diagnosed under age 40.
The Breasties is a nonprofit providing a global community and resources for those impacted by breast and gynecologic cancers, focusing on peer support, education, and advocacy to enhance cancer care experiences.
5 Under 40 offers comprehensive support to women under 40 affected by breast cancer or a BRCA mutation, providing medical, beauty, wellness, and educational services to enhance their holistic well-being and quality of life.
Breastcancer.org: Your trusted resource for breast health and cancer information, providing expert-written content, research news, multimedia resources, personalized recommendations, and a supportive community for those affected by breast cancer. Founded by Dr. Marisa C. Weiss, we're here to help you make informed decisions and navigate your breast health journey.
CancerCare is a leading national organization offering free, professional support services for those facing cancer. They provide counseling, support groups, educational resources, and financial assistance, all delivered by oncology social workers and experts.
SHARE is a national nonprofit that supports and empowers individuals diagnosed with breast or gynecologic cancers through free educational programs, support groups, helplines, online communities, and more. Their mission is to ensure that no one faces these cancers alone.
Cancer Support Community Greater NY & CT at Gilda’s Club empowers individuals impacted by cancer through free support programs, counseling, and workshops. They offer emotional support and resources to complement medical care, creating welcoming communities for people affected by cancer since 2001.
Tigerlily Foundation is a national organization that empowers and supports young women affected by cancer. Their mission is to educate, advocate for, and support these women throughout their cancer journey.
The Metaplastic Breast Cancer Global Alliance is a nonprofit organization dedicated to advancing research and raising awareness for Metaplastic Carcinoma of the Breast, a rare and aggressive form of breast cancer with limited treatment options and poor survival rates.
The American Cancer Society's mission is to enhance the lives of individuals affected by cancer and their families. They achieve this through advocacy, research, and patient support, striving to provide opportunities for all to prevent, detect, treat, and survive cancer.
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Susan G. Komen is a nonprofit founded in 1982 with a mission to end breast cancer. They've invested nearly $3.6 billion in research, community health, advocacy, and programs worldwide, reducing breast cancer deaths by 43% since 1989.
Lymphedema
The National Lymphedema Network is a nonprofit founded in 1988 to provide education and guidance on lymphedema management. They aim to empower practitioners and patients through education, networking, and resources, promoting best practices.
LE&RN is a non-profit founded in 1998 to fight lymphatic diseases through education, research, and advocacy, focusing on lymphedema, lipedema, and lymphatic anomalies. They support research, education, and awareness initiatives and aim to accelerate prevention, treatments, and cures for lymphatic diseases.
Lymphie Strong, founded by Veronica P. Seneriz, is a supportive community and resource hub for individuals with hereditary lymphedema. It offers valuable information, advocacy, and a global support network, making it a crucial platform for those living with this condition.
The Lymphedema Treatment Act (LTA) is a recent federal law set to take effect on 1/1/24. It improves insurance coverage for doctor-prescribed compression supplies used in lymphedema treatment, addressing a coverage gap in Medicare and potentially influencing Medicaid and private insurers.